Unequal NHS care for children with brain tumours

A recent investigation has revealed that children diagnosed with brain tumours receive inconsistent care from the NHS depending on their location. Louise Fox, from Barton-le-Clay, Bedfordshire, whose 13-year-old son George passed away from glioblastoma in 2022, described it as "heartbreakingly clear" that geography can influence the quality of treatment.

The Tessa Jowell Brain Cancer Mission conducted a review of the UK's paediatric neuro-oncology system and uncovered multiple gaps in care for young patients. The report pointed out issues in testing procedures, access to before- and after-school support, and participation in clinical trials, which vary significantly across different regions. Delays in genetic testing and whole genome sequencing were also highlighted.

Some treatment centres face shortages of rehabilitation staff, and children living far from major hospitals experience inconsistent access to specialist care. The study found that only 50% of patients had access to a play specialist, and educational support was not evenly available.

The report stated: "There are notable disparities in access to clinical trial opportunities. Ensuring patients who live far from large academic centres can participate in new research remains a significant challenge."

Louise Holmes emphasized that every child should have the same "hope and opportunities" regardless of where they live in the UK.

George's mother remembered him as "a bright, kind, and caring boy who dreamed of becoming an architect and loved Lego, Arsenal, and golden retrievers." She added: "No matter where you live, you should receive the same outstanding care. Families should know exactly what to expect and have equal hope everywhere in the country."

In a show of support, a group of mothers walked from Westminster to Great Ormond Street Hospital to honor their children and raise funds for the Tessa Jowell Brain Cancer Mission. Nicky Huskens, the charity's chief executive, stated: "This study demonstrates that for children with a brain tumour in the UK, locationwhether urban or ruralcan affect treatment and care. The postcode should never determine the quality of care a child receives."

Huskens also noted that some centres involved in the study are making "significant, targeted improvements." The organisation has introduced a "road map" to enhance treatment and care for children with brain tumours, incorporating recommendations from the report.

The Tessa Jowell Brain Cancer Mission is named after Dame Tessa Jowell, a former Labour cabinet minister who passed away from a brain tumour in 2018.

Author: Sophia Brooks